The Young Adult Sickle Cell Alliance

Activating A Unified Voice Of Hope

Mission:

To empower a unified voice of young adults and merging adults living with sickle cell anemia to advocate to improve the quality of life, access to quality care, eliminate barriers & enhance resources to survive & thrive.

Young Adult Sickle Cell Alliance Co Founders & Lead Advisors

Terri Booker, Esq. Lead Advisor

Young Adult SC Alliance Co Founder

Sickle Cell Warrior & National Sickle Cell Advocate

Carla Lewis, Lead Advisor

Young Adult SC Alliance Co Founder

Mother Of SC Warrior & National Sickle Advocate

Certified Hemoglobinopathy Counselor Trainer

Young Adult Sickle Cell Alliance Advisors

Cory Davis

Young Adult SC Alliance Advisor

Sickle Cell Warrior & National Sickle Cell Advocate

Dominque Goodson

Young Adult SC Alliance Advisor

Sickle Cell Warrior & National Sickle Cell Advocate

Elizabeth White

Young Adult SC Alliance Advisor

Sickle Cell Warrior & National Sickle Cell Advocate

Our Purpose: We serve our community as mentors and peer facilitators  to advocate for quality care and promote research discussions sharing our experience with sickle cell disease.  We share resource information and  promote awareness, unite and align with key stakeholders and advocates for research, policy and legislature efforts in support of sickle cell treatments and a cure.

We are a community that recognizes and live the profound challenges and effects living with sickle cell disease.  We represent adolescents & young adult patients for better treatment, access to quality care and further research.

Lead Advisors and Advisors are also national advocates of Sickle Cell Disease Association of America’s (SCDAA) National Sickle Cell Advocate Network (NSCAN) of patients, families, caregivers, and other stakeholder experts that partner with clinicians and researchers. We provide presentations and participate in research discussions sharing our experience with sickle cell disease. We represent adolescent and young adult patients that promote participation in research studies.

Our History:  The Young Adult Sickle Cell Alliance (YASCA) was established March 2016. A group of young adult advocates and a parent advocate impacted by sickle cell disease connected at an educational conference in September 2015.  After discussing experiences, they realized that there was a common need for more support, resources and a voice for adolescents & young adults living with sickle cell disease.  A bond of advocates quickly formed with eagerness to join together to do more. The Young Adults Sickle Cell Alliance joins forces with the National Sickle Cell Association on a mission to further support youths and adults living with sickle cell disease.

The Young Adult Alliance continues to build our alliance of merging young adults and young adults living with sickle cell anemia between the ages of 15 and 35 to be advocates of committed change as a unified voice.  We welcome the opportunity to mentor and train serious sickle cell warriors committed to join our mission. Please contact if you have interest to join our alliance and learn more please contact us.

We welcome the opportunity to participate in discussions and lecture.

Contact Us: Please contact clewis@kidsconqueringscd.org to request presentations or for an  application and requirements to be an advocate.