HELPING TO FIGHT SICKLE CELL & RELATED HEMOGLOBIN DISEASES
Programs & Services
Young Adult Alliance
The Young Adult Alliance is a collective group of merging young adults & young adult advocates (ages 15 to 35) living with sickle cell disease brought together under a common goal to provide a platform of collaboration for young adults to speak with one voice and be a powerful tool to affect change for all youths and adults going through transition from pediatric to adult care. The Young Adult Alliance is focused being a vessel of support empowering fellow young adults & youths living with sickle cell disease, advancing research, increasing access to quality care to increase survival for young adults.More Info
Youth Ambassador Program
The program is designed to develop leadership, empower, support and encourage children to excel through their experience and educate others about sickle cell. The Youth Ambassador must be an individual with sickle cell disease ages 6-17 that is empowered to spread awareness and represent our organization. Our Ambassadors will make appearances at featured events and be recognized as a positive roll model. We require a completed application, 2 submitted references and an interview. The candidates must live in one of the Central Florida Counties of Orange, Osceola or Seminole. Please request an application if you are interested. email@example.com (Deadline June 1, 2017)
The Gift of Hope Toy and Blood Drive
Our toy & blood drive program encourages the donation of new toys and donated blood. Toys are distributed to families experiencing an economical hardship during the holiday season. We also adopt one of our local children's hospital each year and deliver gifts to hematology/ oncology inpatients for the Christmas Holiday. The Program offers hope to many children that challenge blood diseases and depend on blood transfusions to treat conditions. We are available to arrange & assist companies or schools in organizing a blood & toy drive campaign further support our families. Please contact us for further info at firstname.lastname@example.org or 407 844- 2474
We offer an annual Education Conference during the year. We provide futher public education by participating in community events and providing presentations. We offer educational presentations opportunities for hospital staff, clinics, health fairs, health classes, nursing classes, public schools and community events. Contact us at email@example.com to request a presentation.
Community Outreach Initiative
Community Outreach Initiative (COI) is a Kids Conquering SCD program that allows individuals ages 14- 30 living with sickle cell disease to become active volunteer advocates developing their professional and communication skills while sharing their journey living with sickle cell disease to encourage and educate others. They co present or facilitate presentations and participate in various community service projects, participate in awareness events, provide peer support and help plan support events to help our community impacted by sickle cell and hemoglobin disorders.More
Kids Conquering SCD Camp Boggy Creek Experience
Kids Conquering SCD Camp Boggy Creek Program allows families to join a fun education session with a Kids Conquering SCD Representative during Sickle Cell Family Weekend (April) and Sickle Cell Campers week (August) at Camp Boggy Creek. This is a fun opportunity for all families attending camp to enjoy a great camp experience and session having fun, uniting, learning, sharing experiences and feeling empowered. All interested participates must register through Camp Boggy Creek.Camper Application
We host enrichment support group sessions for individuals and family members who are impacted and living with sickle cell anemia & related hemoglobin diseases. The sessions are provided throughout the year allowing families to connect and gain resources.More
Other Support Services
- Additional Support Services Provided:
- Advocacy and Intervention for sickle cell anemia & hemoglobin disorder patients.
- Family Grants (if resources available) to help pay bills for families with a child frequently hospitalized living with sickle cell anemia
- Referrals for Sickle Cell Trait or Hemoglobin Trait Screening
- Assistance to develop a 504 plan for students
- Case Coordination for families with a young adult or child with a chronic hemoglobin disorder.
Providing Education, Support Events & Resources