KidsConqueringSCD.org

We provide educational presentations within the community. We also schedule sessions throughout the year to provide the community an educational opportunity.

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Join Carla Lewis, CEO of Kids Conquering Sickle Cell Disease Foundation and Rae Blaylark, CEO of Sickle Cell Foundation of Minnesota for the Empowered Caregivers Forum.

Host Carla Lewis and Rae Blaylark are mother’s of children born with sickle cell disease. We welcome you to join a forum created to support, educate and share resources with parents/caregivers of a child/children or young adult with sickle cell disease/ trait or thalassemia. The forum will provide a safe place for parents to share & ask questions bridging the gap to important conversations.

Sessions are scheduled 7:30am PT/ 9:30 am CT/ 10:30 am ET – There are three scheduled dates:

Session I April 20: Exploring Curative Therapy to Treat Sickle Cell Disease

Session II July 20: Sickle Cell: The Focal Segmental Glomerularscelerosis (FSGS)-Kidney Disease

Session III Oct 5: Let’s Talk About It: SCD Management: Moya Moya & Stroke

Each session will offer guest speakers and a Q& A discussion session.

Guest speakers for April 20 session includes: Dr. Ashish Gupta, MD; Our discussion circle session will include an inspirational journey of a warrior sharing her experience managing sickle cell disease and her clinical trial gene therapy experience.

Carla Lewis & Rae Blaylark are parent & patient advocates dedicated to educating the community and support parents /caregivers. As parents they understand that it takes a village of support and resources to provide the best care for children/ young adults living with sickle cell.

Carla Lewis, (Mother of a Sickle Cell Warrior & CEO of Kids Conquering Sickle Cell) along with Rae Blaylark, (Mom of a Sickle Cell Warrior & CEO of Sickle Cell Foundation of Minnesota) is excited to partnership to share their journey & provide a support resource to parents of a child born with sickle cell or thalassemia. Join our forum sessions which will include a panel discussion for parents to have a meaningful educational insight on treatment, mental health support & resources for their journey.

Kids Conquering Sickle Cell Disease Foundation is celebrating our 10 th anniversary providing valuable services to the community!

We are excited to invite you to our 2024 Sickle Cell & Chronic Pain Management Symposium. We are excited to offer an education conference that will certainly offer a unique opportunity to learn the latest advances in clinical care, transition services, and emerging new therapies including updates for curative treatment options.

This is a unique conference for the community of patients, care givers, health care providers, social workers, students and those with interest in sickle cell and chronic pain. This conference is not only for attendees with interest in sickle cell. We have a community that lives with chronic pain suffering in silence. We welcome our community with interest in chronic pain and sickle cell to learn about the latest effective therapies bringing help & hope.

Our Symposium will include time for attendees to network & explore exhibitors. We welcome you join us and make connections & learn about resources.

Our Symposium offers information for all with interest in chronic pain & sickle cell disorders. We welcome you to join this amazing learning experience!

The theme of our 2024 Sickle Cell & Chronic Pain Management Symposium: Embracing New Horizons: Victory of Hope

Did some say Let’s Celebrate Kids Conquering SCD 10 th anniverary? Well Yes Come celebrate with us.

You will not want miss our Kickin It for Sickle Cell Sneaker Ball Reception with a special performance!

Then Saturday we will have presenters, & curative therapy patient experience panel. We have the amazing Dominique Goodson as our Moderator. Our amazing presenters are awaiting to share their knowledge & experiences.

Save the date : June 21 & 22 – (Sneaker Ball Reception 6/21- 7 pm -10 pm & 6/22 Educational Sessions 9am- 4:30 pm)

Patients and families have discounted tickets to allow access the Sneaker Ball Reception & the Symposium.

Come experience an enhancement of your knowledge!

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