Events

Kids Conquering SCD is Active in Community Planning & Participating in Events

Events List

Kids Conquering Sickle Cell Disease presents educational lectures within the community offering presentations locally & nationally. We welcome the opportunity to participate in health fairs and events to educate the community.  We cover topics such as sickle cell & sickle cell trait, eliminating health disparities through patient & family advocacy,  Young Adults Transitioning from Pediatric to Adult Care: Bridge the gap through knowledge & resources, Keys to Sickle Cell Education and Supporting Families, Our Voice Our Power: Understanding Clinical Research and Patient Powered Outcome, and more!

Presenters are trained facilitators: Carla Lewis, Terri Booker, Cory Davis, and Dominique Goodson.

Contact Us to be apart of your event! We welcome the opportunity to educate and empower patients, families, our health community, students, and stakeholders with interest in sickle cell.  Contact us at clewis@kidsconqueringscd.org

Community Presentations & Health Fairs

Family Camp Weekend: April 5-7 2019

Lecture Date: April 6, 2019 3pm

Place: Camp Boggy Creek – Registration Required at Camp Boggy Creek Webite: http://www.boggycreek.org/campers/camper-application/

Presenter: Carla Lewis

Come join a time of education and empowerment during our parent & guardian lecture session with CEO Carla Lewis. Camp Boggy Creek Family Weekend is a great experience for all! During the Lecture Session parents are free to share their experience, gain knew information and resources. This is a time of empowerment while parents will also gain knowledge while enjoying sweet treats.

Camp Boggy Creek Family Weekend

Date: April 13, 2019

Time: 10 – 3pm

Place: 7000 Doctor Phillips Boulevard Orlando, FL 32819

Join Kids Conquering Sickle Cell Disease Foundation at our Purpose, Power & Vision Empowerment & Education Vision Board Workshop.

With our theme, “Crown State Of Mind”, we plan to define the life as Queen & King you are meant to live and take action! This workshop will help attendees experience a fun fulfilled workshop with testimonies, encouragement and questions that will help you explore your goals and gain the clarity you need to develop your vision. God desires the best for you and for you to live a meaningful life. Together we will join a journey to get …motivated, empowered, knowledgeable, ready and confident to achieve goals.

FREE Prizes and Lunch will be provided, and ALL Vision Board supplies are included. We are looking forward to great time of fellowship, education and empowerment!

GET YOUR TICKETS NOW! LIMITED SEATING.

All committed attendees will be automatically be submitted into raffles to win prizes!

Register at Eventbrite:

https://www.eventbrite.com/e/crown-state-of-mind-education-empowerment-vision-board-workshop-tickets-58282266829?aff=ebdssbdestsearch

 

Vision Board Education & Empowerment Workshop

Date: June 19, 2019.

Time: 6pm – 9:00 pm

Place: SENOR FROGS

8747 International Drive #103   Orlando, FL 32819

 

Kids Conquering Sickle Cell Disease Foundation invites you to join us for an evening of fun & fellowship!

This is an evening planned to bring awareness to sickle cell while simply having fun meeting new people or enjoying friends! Our Tables Will Display Red Ballons in Honor of World Sickle Cell Day!

This Mix & Mingle is open to everyone! We will be enjoying great music, entertainment, dancing, karaoke, food & fun! We will challenge your talent and give prizes to anyone with our group brave enough to show their open mic talent!

We know everyone enjoys a good time, so help us bring awareness to sickle cell while having fun!

We Would Love to Mix & Mingle With You!

Every Ticket Purchase Will Be Entered In A Drawing for Prizes. You must be present at the drawing to receive your prize!

Food & Drinks will be available for purchase.

We look forward to seeing you!

World Sickle Cell Day Mix and Mingle Celebration

Date: July 6, 2019

Time: 2-6

Place: Astro Skating Center Orlando

866 South Goldenrod Road     Orlando, FL 32822

Come Join A Fun Exciting Skating Party! We Are Having a Party With a Purpose!

Bring Your Skating Skills & Your Friends! Get Ready To Enjoy A Lively Group With A Caribbean Flare!

Even if You Don’t Skate, We Welcome Your Support!

Come Enjoy Great Fun! This is A Party That Welcomes Everyone!

Your Skates, Entry Fee & Participation in group prize activities is included with the registration fee of $15.00. Get Your Teams Together and Join the Fun!

Once You Register you will be added to Our Special Guest List At The Door. We Will Be Waiting for You to Join the Fun!

We Will Be Enjoying Great Music, Fellowship, Skating, Prizes and More!

All Proceeds Raised Will Support Programs of Kids Conquering Sickle Cell Disease Foundation.

We Look Forward to Seeing You!

WE THANK YOU IN ADVANCE FOR YOUR SUPPORT 🙂

Register on www.Eventbrite.com

This is How We Roll Skate Party Fun Fundraiser

Date: Saturday, September 28, 2019

Time: 9 am-5 pm

Place: Rosen Centre Hotel

9840 International Drive     Orlando, FL 32819

Kids Conquering Sickle Cell Disease Foundation is excited to offer an educational conference that will certainly offer a unique opportunity to learn about chronic pain and sickle cell disease including clinical manifestations of the disease, current therapeutic approaches, best clinical practice, and shared experiences from patients impacted by sickle cell disease and trait. This conference is not only for education about sickle cell, but a resource for anyone fighting a condition with chronic pain.

Our conference will include the subjects that focus on the care of children, adolescents and adults. We understand the need to address the care of the transitional stage of adolescents to adult care so our topics will also fulfill a need to further educate this population. We will have an interactive young adult patient panel that is excited to share their unique experience and best health habits to assist educate our community.

Come experience an enhancement of your knowledge about sickle cell!

Registration Check In available at 8:00 Am.

Conference Begins at 9 AM Sharp.

Join Medical Experts & Our panel guest of young adult warriors excited to share updated info and experiences.

Our Agenda Includes:

Understanding  Sickle Cell Disease & Sickle Cell Trait  

Optimizing Your Health with Medical Cannabis

The Clinical Trial Process 

Understanding Patient Rights & Resources

Primary Pediatric  Care Health Supervision for Sickle Cell Disease

Chronic Pain: Mental Health Disparities

 “Kno More” Patient  Panel Discussion  Your Power,  Your Voice

Topic: Clinical Trial Participation and Bone Marrow Transplants

This is a unique conference for the community of patients, care givers, health care providers, social workers, students and those with interest in sickle cell.

Our Conference will include lunch for all attendees and an empowerment opportunity for our adolescents/young adults to dine with young adult sickle cell warriors to ask questions and gain supportive friendships.

 

Parking is complimentary for Conference Attendees.

Sponsorship Support / Exhibit Opportunity Available. Contact Us at admin@kidsconqueringscd.org  to receive a Packet.

Lodging: Rosen Centre Hotel is offering Early Hotel Room Reservations Rate of $110 available until 9/1/19. If you preferr to call the hotel kindly mention Group Code:KCS

Hotel Booking Link: Rosen Centre Hotel

For Questions Contact: clewis@kidsconqueringscd.org or call 407 844-2474

Sickle Cell & Chronic Pain Management Symposium

Date: Saturday, Novemeber 9, 2019

Time: 10:00 am-3 pm

Cost: Free – Limited Space Available

Registration: All participants must register on Eventbrite. Deadline-Nov 2

Place: Dr. Phillips YMCA

7000 Dr. Phillips Blvd.     Orlando, FL 32819

Kids Conquering Sickle Cell Disease Foundation is excited to offer The Empowered Kids Workshop. This is a unique opportunity for youths living with sickle cell or other chronic blood disorders along with their siblings to learn about healthy habits to adapt a healthy life style, discuss shared experiences from patients impacted by sickle cell disease and trait to better understand sickle cell. This workshop offers training to empower youths to build confidence, emotional intelligence, character, leadership, self-esteem, and social skills. Participants will enjoy a technology experience learning skills of entrepreneurship while also learning photography and culinary skills. Participants will learn about starting their own business.

Come Enjoy a great experience designed for our youths to be Empowered!

Our guest speakers will include sickle cell warriors that have careers and are entrepreneurs.

This is a unique workshop to support or youths fighting sickle cell and chronic blood disorders while also supporting siblings. The workshop aims to further prepare children that will transition from pediatric to adult care. We encourage youths to be empowered leaders gaining knowledge and skills preparing them to adapt healthy habits & skills.

Our workshop will include lunch for all attendees. Participants will be entered for prizes such as a Gift Cards, Great Surprise Gift Bags, & More!

Join Us! Our Youths will Enjoy a great fun experience & great treats!

The Empowered Kids Workshop

Date: Saturday, December 7th, 2019

Time: 11:00 am-4 pm

Cost: Free

Place: Abracadabra Ice Cream Factory

520 N Main Street Kissimmee, FL 34744

Kids Conquering Sickle Cell Disease Foundation is excited to host our Gift of Hope Toy & Blood Drive. Children fighting blood diseases such as sickle cell depend on blood transfusions for treatments to save their life. Your contribution of donating blood gives children help and hope! Your support assist us to help our community impacted by sickle cell & other disorders.

Kids Conquering Sickle Cell Disease is seeking sponsors to adopt low income families with a child with sickle cell disease or related illness experiencing health challenges. We aim to support families during the holiday season. We understand the health and financial burden a family can experience caring for a child with a chronic life threatening condition associated with frequent hospital admissions and medical care. We welcome you to contact us and offer a gift of hope for the holiday season.

Contact admin@kidsconqueringscd.org

******Please Bring A New Toy to Support Our Gift of Hope Toy & Blood Drive to Support Children Fighting Sickle Cell & Chronic Blood Diseases

For Questions Contact: clewis@kidsconqueringscd.org or call 407 844-2474

A Gift of Hope Toy & Blood Drive