KidsConqueringSCD.org

Kids Conquering Sickle Cell Disease Foundation is excited to offer our  new virtual transition education program with support sessions for adolescents, their parents, and young adults starting in August 2020. Our goal is to increase the number of emerging adults who successfully transition into adult care and provide support to prepare for adult life with a chronic condition.

The interactive session topics will include, but not be limited to, balancing life with sickle cell or related blood disease, healthy habits, warning signs of complications, post high school planning (college/workforce, nutrition, social life), mental health, managing pain, sexual health, organizing health care information, planning for emergencies away from home, etc.

We understand that teens and young adults need education, resources, and support as they transition from pediatric care to adult care. Our interactive sessions are tailored to provide education and fun while we journey through five monthly sessions. Topics will be tailored developmentally. The sessions will be facilitated by individuals with topical expertise and some sessions will be co-facilitated by presenters with lived experiences. We will include fun activities that include prizes for our participants. We will also be providing our Conquerors Tool Kit to participants that successfully complete our program. This great toolkit includes items such as a book bag, heating pad, thermometer, mask, gloves, water bottle and more!

The sessions will be segmented by age (16-18; 19-21) and simultaneous parent sessions (of 16-19 yrs. old) will be conducted. There will be 5 sessions August – December. Sessions are once a month on the second Saturday of every month.