Empowered to Transition: Emerging Adults Sickle Cell Education & Support Program
Supporting an Emerging Generation to Navigate Resources & Prepare for the Future
Special Thanks to Our Sponsors
The Emerging Adult Program is made possible due to dedicated sponsors committed to increase resources for the community impacted by sickle cell & related disorders.
Thank You Imara Inc.
We are grateful for the Sponsorship of Imara Inc. to partnership & support the Emerging Adult Program!
Thank You Global Blood Thereupics
We are grateful for the sponsorship of Global Blood Therapeutics to partnership & support the Emerging Adult Program!
Kids Conquering Sickle Cell Disease Foundation is excited to offer our new virtual transition education program with support sessions for adolescents, their parents, and young adults starting in August 2020. Our goal is to increase the number of emerging adults who successfully transition into adult care and provide support to prepare for adult life with a chronic condition.
The interactive session topics will include, but not be limited to, balancing life with sickle cell or related blood disease, healthy habits, warning signs of complications, post high school planning (college/workforce, nutrition, social life), mental health, managing pain, sexual health, organizing health care information, planning for emergencies away from home, etc.
We understand that teens and young adults need education, resources, and support as they transition from pediatric care to adult care. Our interactive sessions are tailored to provide education and fun while we journey through five monthly sessions. Topics will be tailored developmentally. The sessions will be facilitated by individuals with topical expertise and some sessions will be co-facilitated by presenters with lived experiences. We will include fun activities that include prizes for our participants. We will also be providing our Conquerors Tool Kit to participants that successfully complete our program. This great toolkit includes items such as a book bag, heating pad, thermometer, mask, gloves, water bottle and more!
The sessions will be segmented by age (16-18; 19-21) and simultaneous parent sessions (of 16-19 yrs. old) will be conducted. There will be 5 sessions August – December. Sessions are once a month on the second Saturday of every month.
The sessions will be segmented by age (16-18; 19-21) and simultaneous parent sessions (of 16-19 yrs. old) will be conducted. There will be 5 sessions August – December 2020. Sessions are once a month on the second Saturday of every month.
Scheduled Sessions : August – December 11 AM – 1pm
- Patients must be an emerging adult 16 -21
- Patient/ Caregiver must reside in the following Florida Counties: Orange, Osceola, Seminole, Brevard, Volusia, Lake, Polk (Other counties with limited services are eligible)
- Patients must have confirmed sickle cell disease/Thalassemia or a related disorder
We welcome you to Register! It is never to too late to learn, make connections and gain resources. You will be directed to our registration page at Eventbrite:
Our Program Sponsors
Imara Inc. is a clinical-stage biotechnology company dedicated to developing and commercializing novel therapeutics to treat patients suffering from rare inherited genetic disorders of hemoglobin. For more information, please visit www.imaratx.com.
Kids Conquering Sickle Cell Disease appreciates the generosity & support of our sponsors Imara Inc. & Global Blood Therapeutics. Our Emerging Adult Program is made possible to further provide resources & support to adolescents/ young adults living in Central Florida fighting sickle cell, thalassemia or a related blood disease. Together we partnership to build resources for the community!
GBT is working to discover, develop and deliver life-changing treatments for people living with grievous blood-based disorders, starting with sickle cell disease. GBT’s medicine is the first treatment approved by FDA to target an underlying cause of SCD. GBT is developing additional treatments. For more information, please visit www.gbt.com